Yesterday morning, The Board of Rabbis of Greater Rhode Island gathered for our monthly meeting. We received an intelligent, moving, informative briefing by two representatives of The Jewish Genetic Diseases Consortium, a coalition of ten organizations dedicated to the issue of genetic disease.
Shari Ungerleider, the Coalition's Project Coordinator, and Randy Glazer, the Coalition's Chair shared their personal stories of giving birth to children with genetic disease and the dearth of testing and/or mis-reading and misdiagnosis involved in their respective pregnancies.
There are a few points in Ms. Ungerleider's and Ms. Glazer's presentation that were compelling new information for me. Although I do always think it would be nice if readers of this blog liked what I've written so much that you'd be moved to share the blog with your family and friends . . . this week I am specifically asking you to. Please use whatever sharing techniques you have at your disposal.
Here are some of the things I learned:
Rabbi Amy Levin
has been Torat Yisrael's rabbi since the summer of 2004 and serves as President of the Board of Rabbis of Greater Rhode Island.